Burden of Care among Mothers of Children with Congenital Heart Disease at Tertiary Hospitals, Addis Ababa, Ethiopia

Abstract

Abstract Background- Congenital heart disease is a problem with structure of the heart that a child born with. Mothers play a key role in caring for their sick children. Their experiences of care were influenced by culture, rules, financial and the system of health and care services. Objective- To assess burden of care among mothers of children with congenital heart disease at Tertiary Hospitals, Addis Ababa, Ethiopia Methods-A cross-sectional descriptive study is conducted through Zarit Burden Interview (ZBI), taken from similar study and socio-demographic factors was used to assess the burden of care among caregivers having children with CHD, starting at October 2023 to January 2024, care givers whose child is a range of 0- 18 years are included. Results- 51% of mothers have moderate to severe burden, using multinomial regression model, , the finding revealed that Women whose age >=30 years had 1.2 folds increase in its mild to moderate burden than little or no burden. Those who have high income had 59% less likely of mild to moderate burden compared to little burden. The study participant who were from rural area were 3.5 folds increase the chance of mild to moderate burden than little or no burden. Participants having higher education level were 47% less likely of developing severe burden. Conclusion- CHD is associated with a significant caregivers’ disease burden. Care givers education status, living at urban areas, and better income level were associated with less burden of care. Key words- Burden of care, associated factors, congenital heart disease, zarit burden interview